So let me give you a bit of back story first...
It all started last night.
(FIRST MISTAKE) I felt that I deserved a shower, so I put the kids in bed...only 30 mins late...and decided to lather up. Hubs was at work, so I knew that I was taking a chance, but a warm shower sounded delicious.
(SECOND MISTAKE) I didn't check my gut before I lathered up my hair.
I hear screams. Gunnar has impaled himself on the little things that go in the back of picture frames to hook on the nail in that wall. That sucker went in 1/2 an inch...and essentially is barbed so that it can anchor in the wall.
Several gray hairs, blood, sweat, tears, soap, phone calls and some curse words later the medical consensus apart from my own was that he would need to follow up at his GP's office the next day (that being today). Now I want to make it clear...this next visit was at the behest of myself, an ER doctor, a NP at the practice, and the Owner/Doctor at the practice.
So I have already taken a substantial amount of time off to tote this kid to doctor's appointments since Monday morning, and I want to tread lightly on my boss' nerves and patient. He has been so accommodating that I don't want him to feel that I am trying to take advantage of him. Consequently I recruited the help of my husband to take him to the doctor and my mother to facilitate the transportation.
When checking our son in to the office today, my husband had his card in hand to pay all co pay's necessary to get him seen for the day. He also paid a "past due" balance...that, upon further investigation after being called and told the amount...is part of this Well Check last week that has not been submitted to insurance for payment...to the tune of 148$!!!
He couldn't tell the whole story, because he wasn't there and because he never takes the kids to the office. So they inspect, make sure that it is all out, and send him on their merry way with a lollipop and instructions to watch for infection. He has an extreme history of Staph Infections and as a precaution is normally placed on an antibiotic. I will call about that tomorrow.
Then I get to hear about how I over reacted to the barbed things penetrating my son's foot. Sigh.
So I am still worried about infection, still worried about his heel bone from how far it went into his foot, and I am worried at how freely my husband will just swipe a card because he's told he owes a balance.
Wednesday, May 1, 2013
Thursday, April 25, 2013
OMG The Appointments are killing me
(First let me apologize, this is more of a rambling than anything, I am trying to clear my head, write something thoughtful, and watch my floppy handed son for a freak out session because his favorite show is on and his siblings are getting close to him)
I work 50 to 75 hours a week, no that does not include time at home, so with all these appointments that are coming together, I am struggling.
Tomorrow we have a 845 for the results of his EEG, and then hopefully he can go back on his meds.
Monday we have an initial intake at 2 in Gainesville and and Allergist appointment at 5
Then on the 8th SSI Interview and Application
Then on the 15th the initial Appointment with Psych at the hospital.
Match that up with the endless phone calls to the health department, follow up calls to doctors to make sure that we are heard, social services, insurance for coverage denials, pediatricians, research facilities...and there just isn't enough time in the world. Oh and not to mention the follow up appointments and recommendations that will come from the aforementioned appointments.
To balance Gunnar's needs with my work load at my "I'm getting paid to do this" job - its super difficult to balance...then add in the housework, the kids homework, and attention my other 3 adorable kids needs and I need the 24 hours in a day to get stuff done...and then additional time to sleep.
I recently read an article that successful people really use their weekends to relax, they don't do housework or routine shopping, or improvement projects, the relax, go out with friends, they have fun. I don't know what fun is anymore. All I use my weekends for is housework, catch up calls, applications, intake forms, and repairs on things that got caught up in an episode.
I have way to many balls up in the air, I am afraid that I am going to drop one and then it will be like dominos and everything will fall with it.
So here is what I was originally intending to write down:
1. Give me a night that I don't have to worry about the housework and can just focus on their kids. I'm not saying you have to clean my nasty toilets, but offer to make a meal, pick up their dry cleaning, do a couple of loads of laundry, send over your cleaning lady for a quick or thorough scrub (how generous do you feel).
2. Network with and for me. Maybe your Special Needs Mom feels alone, maybe she doesn't know anyone in a similar situation, but you do. Get them in touch with each other. Do a little research on your own for them...did you hear something on the news? read an article? Put us in touch with those resources.
3. Don't tell me that everything is going to be ok. Not only is it insulting, it's really not realistic for many of us. We have tons of things to think about, get down, set up, and plan for. There is no easy fix for what we are going through, no amount of love will cure them, no magic pills. We have endless appointments to set up, a future with and without us to plan for...it's not ideal and it's certainly not ok.
4. Make me accept your help. We feel like no one is going to put in as much time and effort as well will, and we don't want to seem vulnerable. We feel like if we let down our guard then we will loose control. We feel like if we let you help, you will feel burdened by us. So if you want to help, mean it, and make us accept it.
5. Volunteer to fight for our cause. Do a walk, bake sale, donate, volunteer your time at a clinic. The more you learn about my cause, the better you know my kid, the more connected I feel to you.
and finally...
6. Accept us. You might think that this is easy, but it's not. A lot of our time is absorbed by making ends meet financially, taking care of our kids, and grabbing sleep while we can. Don't be offended if we can't come out. Don't think that my kid has a disease that's contagious - he's not. The best thing that you can do for him right now is help him socialize, with understanding. Don't run for the hills.
I work 50 to 75 hours a week, no that does not include time at home, so with all these appointments that are coming together, I am struggling.
Tomorrow we have a 845 for the results of his EEG, and then hopefully he can go back on his meds.
Monday we have an initial intake at 2 in Gainesville and and Allergist appointment at 5
Then on the 8th SSI Interview and Application
Then on the 15th the initial Appointment with Psych at the hospital.
Match that up with the endless phone calls to the health department, follow up calls to doctors to make sure that we are heard, social services, insurance for coverage denials, pediatricians, research facilities...and there just isn't enough time in the world. Oh and not to mention the follow up appointments and recommendations that will come from the aforementioned appointments.
To balance Gunnar's needs with my work load at my "I'm getting paid to do this" job - its super difficult to balance...then add in the housework, the kids homework, and attention my other 3 adorable kids needs and I need the 24 hours in a day to get stuff done...and then additional time to sleep.
I recently read an article that successful people really use their weekends to relax, they don't do housework or routine shopping, or improvement projects, the relax, go out with friends, they have fun. I don't know what fun is anymore. All I use my weekends for is housework, catch up calls, applications, intake forms, and repairs on things that got caught up in an episode.
I have way to many balls up in the air, I am afraid that I am going to drop one and then it will be like dominos and everything will fall with it.
So here is what I was originally intending to write down:
1. Give me a night that I don't have to worry about the housework and can just focus on their kids. I'm not saying you have to clean my nasty toilets, but offer to make a meal, pick up their dry cleaning, do a couple of loads of laundry, send over your cleaning lady for a quick or thorough scrub (how generous do you feel).
2. Network with and for me. Maybe your Special Needs Mom feels alone, maybe she doesn't know anyone in a similar situation, but you do. Get them in touch with each other. Do a little research on your own for them...did you hear something on the news? read an article? Put us in touch with those resources.
3. Don't tell me that everything is going to be ok. Not only is it insulting, it's really not realistic for many of us. We have tons of things to think about, get down, set up, and plan for. There is no easy fix for what we are going through, no amount of love will cure them, no magic pills. We have endless appointments to set up, a future with and without us to plan for...it's not ideal and it's certainly not ok.
4. Make me accept your help. We feel like no one is going to put in as much time and effort as well will, and we don't want to seem vulnerable. We feel like if we let down our guard then we will loose control. We feel like if we let you help, you will feel burdened by us. So if you want to help, mean it, and make us accept it.
5. Volunteer to fight for our cause. Do a walk, bake sale, donate, volunteer your time at a clinic. The more you learn about my cause, the better you know my kid, the more connected I feel to you.
and finally...
6. Accept us. You might think that this is easy, but it's not. A lot of our time is absorbed by making ends meet financially, taking care of our kids, and grabbing sleep while we can. Don't be offended if we can't come out. Don't think that my kid has a disease that's contagious - he's not. The best thing that you can do for him right now is help him socialize, with understanding. Don't run for the hills.
Tuesday, April 23, 2013
What I have learned in the 6 months I have been seeking answers and help for my son. (A shockingly brief over view)
6 months. 6 months of applications, rejections, missed appointment deadlines, un-returned phone calls, I can't help you's. 6 months, and this is what I have learned, and albeit, it may not seem like much, but it is all stuff I wish someone had honestly told me before we started out journey.
I should start out this way, with a little back story first. And when I say little...I mean bare bones story...
My son, Gunnar, is 6, he has ASD, and we have already been fighting 4 years to get a diagnosis for him. His 2nd Pediatrician and I had long suspected that he was somewhere on the spectrum, but there is a lot of hoops to go through to obtain a formal diagnosis. And, naively, I thought that since I had been fighting so hard to prevent him from slipping through the cracks that I was a pro...and I was wrong.
You have to call at least twice a day. If you don't you will get lost in the shuffle of all the other calls. The more messages you leave, the clearer your message of wanting services gets heard...it's the only way that you can show that you are serious in wanting a call back.
You have to call at least twice a day everyday. "Please leave a message and I will return your call by the end of business today," is BS. Everyone says it, mostly to make you feel like you are getting somewhere. That message, however, is the Cable Guy of messages. You hang around waiting until close of business, you waste your day not doing anything that would prevent you from answering the phone, and the call doesn't happen. Again persistence pays off.
Some of these people just don't care. Sometimes they are just the person that answers the phone. They have no training outside of basic message taking. You have to call and know what you want, otherwise you call or email and get placed on a 10 month waiting list for something that you do not need, would never in a million years qualify for, or don't meet basic eligibility for.
You will have to break out the big guns. You will have to threaten to call supervisors. And sometimes the threat is enough, but most of the time you will have to call the supervisor, board or governing body of the department that you called.
You will have to fight. You will have to quote their own policies to them. "You cannot simply turn my child away on the phone, you have to come and evaluate him/her. It's the law. You cannot make a determination about someone you have never met." Sometimes they are still to stuck in their ways of shortcut to acknowledge that you are quoting from their own handbook and will have to report them to a government oversight agency.
You will cry. A. Lot. Sometimes you will cry because you are literally getting no where fast. Sometimes you will cry because you just had another 3 doors opened, but you simply cannot tell your child's story to another living person that day. Sometimes you will use your tears to get more contacts. Frustration, Happiness, Exhaustion, Manipulation...these are all tears that you will learn well.
Record everything. Write down everything. You would do well to always have a pen and post-it's with you. You will want to write down dates, times, names, questions asked, requirements given, a link to the information that they just given you, a follow up number (don't take an 800, get the line that they would have their family call on), a time frame for a return call. Keep it all in a notebook, keeping in mind that you will want to have all of this in page protectors, because paper is not water proof and you will cry over it at least once.
You will get told no much more often than you are told yes. Don't take it lying down. Ask why, what else can be done, can you just evaluate them, what if you just saw them for diagnostic purposes, who can you give me to call instead, what recommendations can you offer for someone in this situation? Sometimes simply asking those questions, you will change their minds.
Not everyone is qualified to see your child. Be up front about their diagnosis because the last thing that you want is someone who is not qualified to treat someone with your kids specific needs. Trust me it's not fun for anyone. Sometimes it will be tempting to leave out some of the truth...they will find out one way or another, you will spill the beans of they will observe it themselves, and then you will be at square 1 again.
Take free advice. As above, you are going to be told no, but one of the key things to ask is what recommendations can you offer. This is going to lend to you a plethora of free techniques based on what they have heard. Most of it will be things that you have heard over and over again, but there will be a few diamonds in the rough.
On the flipside of that coin...not every child with ASD is alike and therefore, not every technique suggested is going to work for your child. So try it, and if it doesn't work, move on. You are not a failure, you are just going to have to keep searching through your haystack to find out that the needle is indeed 3 stacks over.
Not every resource is as awesome as the person who provided it to you thinks that they are. Sometimes it's because that resource worked for them, sometimes it's because they just don't have anything that is relative to your child, and sometimes it's because they are everyone's resource and they are just tired. So when you find someone that truly helps you, thank them, try not to mis-use them, thank them, let them know how awesome they are, thank them, connect with them, and did I say thank them?
My hope for writing all of this down is that my journey can help someone else's become a little bit easier. So if you know someone that is going through this same or similar journey, I encourage you to share. I may seem very cynical, and while I feel that I have earned that right, I am only trying to be honest. I truly wish that someone would have shared what a roller coaster this journey was going to be, and mine is not even over yet.
I should start out this way, with a little back story first. And when I say little...I mean bare bones story...My son, Gunnar, is 6, he has ASD, and we have already been fighting 4 years to get a diagnosis for him. His 2nd Pediatrician and I had long suspected that he was somewhere on the spectrum, but there is a lot of hoops to go through to obtain a formal diagnosis. And, naively, I thought that since I had been fighting so hard to prevent him from slipping through the cracks that I was a pro...and I was wrong.
You have to call at least twice a day. If you don't you will get lost in the shuffle of all the other calls. The more messages you leave, the clearer your message of wanting services gets heard...it's the only way that you can show that you are serious in wanting a call back.
You have to call at least twice a day everyday. "Please leave a message and I will return your call by the end of business today," is BS. Everyone says it, mostly to make you feel like you are getting somewhere. That message, however, is the Cable Guy of messages. You hang around waiting until close of business, you waste your day not doing anything that would prevent you from answering the phone, and the call doesn't happen. Again persistence pays off.
Some of these people just don't care. Sometimes they are just the person that answers the phone. They have no training outside of basic message taking. You have to call and know what you want, otherwise you call or email and get placed on a 10 month waiting list for something that you do not need, would never in a million years qualify for, or don't meet basic eligibility for.
You will have to break out the big guns. You will have to threaten to call supervisors. And sometimes the threat is enough, but most of the time you will have to call the supervisor, board or governing body of the department that you called.
You will have to fight. You will have to quote their own policies to them. "You cannot simply turn my child away on the phone, you have to come and evaluate him/her. It's the law. You cannot make a determination about someone you have never met." Sometimes they are still to stuck in their ways of shortcut to acknowledge that you are quoting from their own handbook and will have to report them to a government oversight agency.
You will cry. A. Lot. Sometimes you will cry because you are literally getting no where fast. Sometimes you will cry because you just had another 3 doors opened, but you simply cannot tell your child's story to another living person that day. Sometimes you will use your tears to get more contacts. Frustration, Happiness, Exhaustion, Manipulation...these are all tears that you will learn well.
Record everything. Write down everything. You would do well to always have a pen and post-it's with you. You will want to write down dates, times, names, questions asked, requirements given, a link to the information that they just given you, a follow up number (don't take an 800, get the line that they would have their family call on), a time frame for a return call. Keep it all in a notebook, keeping in mind that you will want to have all of this in page protectors, because paper is not water proof and you will cry over it at least once.
You will get told no much more often than you are told yes. Don't take it lying down. Ask why, what else can be done, can you just evaluate them, what if you just saw them for diagnostic purposes, who can you give me to call instead, what recommendations can you offer for someone in this situation? Sometimes simply asking those questions, you will change their minds.
Not everyone is qualified to see your child. Be up front about their diagnosis because the last thing that you want is someone who is not qualified to treat someone with your kids specific needs. Trust me it's not fun for anyone. Sometimes it will be tempting to leave out some of the truth...they will find out one way or another, you will spill the beans of they will observe it themselves, and then you will be at square 1 again.
Take free advice. As above, you are going to be told no, but one of the key things to ask is what recommendations can you offer. This is going to lend to you a plethora of free techniques based on what they have heard. Most of it will be things that you have heard over and over again, but there will be a few diamonds in the rough.
On the flipside of that coin...not every child with ASD is alike and therefore, not every technique suggested is going to work for your child. So try it, and if it doesn't work, move on. You are not a failure, you are just going to have to keep searching through your haystack to find out that the needle is indeed 3 stacks over.
Not every resource is as awesome as the person who provided it to you thinks that they are. Sometimes it's because that resource worked for them, sometimes it's because they just don't have anything that is relative to your child, and sometimes it's because they are everyone's resource and they are just tired. So when you find someone that truly helps you, thank them, try not to mis-use them, thank them, let them know how awesome they are, thank them, connect with them, and did I say thank them?
My hope for writing all of this down is that my journey can help someone else's become a little bit easier. So if you know someone that is going through this same or similar journey, I encourage you to share. I may seem very cynical, and while I feel that I have earned that right, I am only trying to be honest. I truly wish that someone would have shared what a roller coaster this journey was going to be, and mine is not even over yet.
Sunday, December 9, 2012
I need your help!
One thing that I do not do well with is ask for help. I have an amazing support group that cheers me on and has been offering me help for years that I have been to proud to take.
While Gunnar's life has not changed as of yet, there have been a vast world of opportunities opened to him. I have received a list of recommendations for his psychologist that should help ease some of his everyday struggles. I feel like doing this makes less time for me to focus on the other kids so I am not going to be too proud to ask for help with this.
So here is what I need help with...if you can donate your time...I love you for it...if you have suggestions that I can use to help make things easier...I love you for it...if you have resources or recommendations...I love you for it. Anything you can do to help us out would be of great help to make sure that we can get him on the path of healing as soon as possible...and not totally neglect the other kids.
Sleep Items: Since Gunnar doesn't sleep, and this is a common symptom of Autistic Children there have been suggestions. Weighted Blankets...uh...all the ones that I have looked at are like $300! If you can find one cheaper or know how to make one, and if so can help me make one (I am stitching challenged at the moment) Love Forever comes to mind. Laundry Baskets, for the time being Gunnar feels the most secure to sleep in one of these bad boys...thing is there is never 1 readily available.
Visual Aides : I need help finding/making pictures, cutting, laminating, and attaching Velcro.
Structuring his Day : Visual Aides to help him know what is expected, see what is coming next. I have found a ton of PDF files on the Internet...they all have great photos...but each one seems to be missing something that would be helpful to him.
Reward System : Ideas on something inexpensive? Do you guys have something that works? How can I make this visually appealing?
Consequences : Pretty much the same as above.
Don't Forgets : Steps to common daily activities (Potty, Brushing Teeth, Washing)
Meal Planning : So many of you have already offered to help with our meals. Thank you sooooo much! We do have allergies though...All Nuts (Peanuts and Tree Nuts) Eggs, Mango, Processed Bananas. Please don't go out of your way...even if you want to come use the stuff we have on hand, and our electricity, and our pots and pans...we have tons of kids to do the dishes.
Play Groups : Your house...our house...the playground...he needs to practice socialization skills. Just please be prepared with the fact that he doesn't always realize his size, he has the social skills of a 2 year old, he is working on not hitting or screaming.
Sensory Objects : Squish Balls. Stress Balls. Fidget Objects (things that keep his hands busy)...make them buy them? Which is better? Any suggestions?
Kelsey, I am getting with the intake Nurse and then I'll let you know what I need help with from you and your SPED Partners.
Thanks for all the encouraging words, support and help!
While Gunnar's life has not changed as of yet, there have been a vast world of opportunities opened to him. I have received a list of recommendations for his psychologist that should help ease some of his everyday struggles. I feel like doing this makes less time for me to focus on the other kids so I am not going to be too proud to ask for help with this.
So here is what I need help with...if you can donate your time...I love you for it...if you have suggestions that I can use to help make things easier...I love you for it...if you have resources or recommendations...I love you for it. Anything you can do to help us out would be of great help to make sure that we can get him on the path of healing as soon as possible...and not totally neglect the other kids.
Sleep Items: Since Gunnar doesn't sleep, and this is a common symptom of Autistic Children there have been suggestions. Weighted Blankets...uh...all the ones that I have looked at are like $300! If you can find one cheaper or know how to make one, and if so can help me make one (I am stitching challenged at the moment) Love Forever comes to mind. Laundry Baskets, for the time being Gunnar feels the most secure to sleep in one of these bad boys...thing is there is never 1 readily available.
Visual Aides : I need help finding/making pictures, cutting, laminating, and attaching Velcro.
Structuring his Day : Visual Aides to help him know what is expected, see what is coming next. I have found a ton of PDF files on the Internet...they all have great photos...but each one seems to be missing something that would be helpful to him.
Reward System : Ideas on something inexpensive? Do you guys have something that works? How can I make this visually appealing?
Consequences : Pretty much the same as above.
Don't Forgets : Steps to common daily activities (Potty, Brushing Teeth, Washing)
Meal Planning : So many of you have already offered to help with our meals. Thank you sooooo much! We do have allergies though...All Nuts (Peanuts and Tree Nuts) Eggs, Mango, Processed Bananas. Please don't go out of your way...even if you want to come use the stuff we have on hand, and our electricity, and our pots and pans...we have tons of kids to do the dishes.
Play Groups : Your house...our house...the playground...he needs to practice socialization skills. Just please be prepared with the fact that he doesn't always realize his size, he has the social skills of a 2 year old, he is working on not hitting or screaming.
Sensory Objects : Squish Balls. Stress Balls. Fidget Objects (things that keep his hands busy)...make them buy them? Which is better? Any suggestions?
Kelsey, I am getting with the intake Nurse and then I'll let you know what I need help with from you and your SPED Partners.
Thanks for all the encouraging words, support and help!
Thursday, December 6, 2012
Golden Ticket
We have been patiently-ish waiting in line for 2 and a half years. We have been to countless doctors, been too numerous hospitals, too many clinics to count. We have had every battery of tests known to man performed. We have maxed out our insurance coverage. We have heard maybe's, definately's, I think's, I would consider's. We have lived in a system that has let our son slip further into the cracks. We have heard that he is abnormal, deaf, willful, retarded, faking. We have been accused of making him like this, making him pretend, accused of lying. We have been told that there is nothing wrong, it's all in our imagination.
Finally today, after the hard work of one clinical psychologist, that was reluctant to even test him because of all the other results that had pooled in, we finally have some answers. And the best part...they aren't guesses or maybe's...they are definates. They are going down in his medical records. Copy of this 11 page, 8 pt font, single spaced document is going to every single doctor that he has seen...and will ever see. We got told that it is not all in our heads, we aren't making it up, we aren't seeing things.
So we got the diagnosis today...it feels like we have been invited to this super secret party for the past few years. The thing about this party is...even if you know a guy that can get you in...if you don't have the address to the party...that guy does yo know good. And because this party moves around a lot...because it is so super exclusive...if you don't get the super secret text...you can't get in...and even if someone forwards you that text...it's the ticket man...that little tiny piece of paper is the key. Today we got our Golden Ticket.
Sadly, he is "labeled"...but he is labeled with a word that we've suspected for years. A label that people have been too scared to put on him because he didn't exhibit all the classic signs. Medicine has come a long way in the past 30 months though...and we are beginning to open up this world a little bit more. But this label will pave a new road for him. This label entitles him to services from the state. This label entitles him to a better level of coverage from insurance agencies.
We received a list of Recommendations from his psychologist today. One to get him Medicaid Coverage to supplement his existing coverage from our private insurance. This means that all of his services could potentially be covered 100%. This would be a huge burden lifted off of our shoulders. It's always been a struggle to get him services because of what insurance would cover and what we could afford to cover. This, however, is not an easy task to get accomplished. It is exhausting to go through all the forms and listen to the circles that you have to go in...one actually led me in a path that in the end I was speaking with the person that I called first.
We have to find a psychiatrist so that we can get him leveled out (hopefully not to medicated) so that he is not a danger to others or to himself. You don't even want to know the waitlist we got placed on for that.
We need to re-evaluate all of his current doctors to make sure that they have the specific skill set to deal with him adequately so that he can receive proper care.
We need to start looking for in home care for him and in home therapy.
We have a lot of things that we have to do...but first on my list is a hug.
Finally today, after the hard work of one clinical psychologist, that was reluctant to even test him because of all the other results that had pooled in, we finally have some answers. And the best part...they aren't guesses or maybe's...they are definates. They are going down in his medical records. Copy of this 11 page, 8 pt font, single spaced document is going to every single doctor that he has seen...and will ever see. We got told that it is not all in our heads, we aren't making it up, we aren't seeing things.
So we got the diagnosis today...it feels like we have been invited to this super secret party for the past few years. The thing about this party is...even if you know a guy that can get you in...if you don't have the address to the party...that guy does yo know good. And because this party moves around a lot...because it is so super exclusive...if you don't get the super secret text...you can't get in...and even if someone forwards you that text...it's the ticket man...that little tiny piece of paper is the key. Today we got our Golden Ticket.
Sadly, he is "labeled"...but he is labeled with a word that we've suspected for years. A label that people have been too scared to put on him because he didn't exhibit all the classic signs. Medicine has come a long way in the past 30 months though...and we are beginning to open up this world a little bit more. But this label will pave a new road for him. This label entitles him to services from the state. This label entitles him to a better level of coverage from insurance agencies.
We received a list of Recommendations from his psychologist today. One to get him Medicaid Coverage to supplement his existing coverage from our private insurance. This means that all of his services could potentially be covered 100%. This would be a huge burden lifted off of our shoulders. It's always been a struggle to get him services because of what insurance would cover and what we could afford to cover. This, however, is not an easy task to get accomplished. It is exhausting to go through all the forms and listen to the circles that you have to go in...one actually led me in a path that in the end I was speaking with the person that I called first.
We have to find a psychiatrist so that we can get him leveled out (hopefully not to medicated) so that he is not a danger to others or to himself. You don't even want to know the waitlist we got placed on for that.
We need to re-evaluate all of his current doctors to make sure that they have the specific skill set to deal with him adequately so that he can receive proper care.
We need to start looking for in home care for him and in home therapy.
We have a lot of things that we have to do...but first on my list is a hug.
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